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Co-design and experience to promote self-care in informal caregivers of dependent older adults: Protocol for an action research study
Authors
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Mariana Loezar Hernández
Instituto Milenio para la Investigación del Cuidado
https://orcid.org/0000-0003-4525-2300
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Claudia Miranda-Castillo
Instituto Milenio para la Investigación del Cuidado
https://orcid.org/0000-0002-0282-5845
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Alejandra-Ximena Araya
Instituto Milenio para la Investigación del Cuidado
https://orcid.org/0000-0001-9064-3947
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Abstract
Introduction: Most older people with long-term care needs worldwide receive care and support from informal carers. Evidence shows that female carers have limited capacity for self-care, which has negative effects on their health and well-being. Objective: To design an intervention protocol aimed at promoting self-care capacity in women who provide informal care to older people, incorporating the perspectives of carers and primary care professionals in Chile. Methodology: An experience-based co-design methodology will be used. Women who provide informal care at home to dependent older people and primary care social and health professionals will participate. Non-participant observations, semi-structured interviews, narrative interviews, discussion groups and co-design groups will be conducted. The data will be analysed using reflective thematic analysis. The study has informed consent, safeguards confidentiality and has been approved by the relevant institutional ethics committees. The results of this project are expected to provide an in-depth understanding of the experiences, needs and meanings of self-care from the perspective of both carers and social and health professionals. The project is also expected to strengthen the link between the community and primary care, promoting recognition of the role of carers and the incorporation of self-care as an essential component of social and health support. Finally, it is hoped that the findings will generate evidence to guide public policies and programmes aimed at improving the well-being of carers.
Keywords:
Caregivers , Primary Health Care , Self-Care , Aging , Qualitative ResearchReferences
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